Skip to main content
  1. Home
  2. About
  3. Selected Bibliography

Selected Bibliography

  • Blixen, C.E. and G.J. Agich, Stroke patients’ preferences and values about emergency research. J Med Ethics, 2005. 31(10): p. 608-11.  Click for Full text
  • Boden-Albala B, Carman H, Southwick L, Parikh NS, Roberts E, Waddy S, Edwards, D. Examining barriers and practices to recruitment and retention in stroke clinical trials. Stroke; a journal of cerebral circulation. 2015; 46:2232-2237  Click for Full text
  • Burke, J.F., et al., Enrollment of women and minorities in NINDS trials. Neurology, 2011. 76(4): p. 354-60. Click for Full text
  • Chan, A.W., et al., SPIRIT 2013 explanation and elaboration: guidance for protocols of clinical trials. BMJ, 2013. 346: p. e7586.  Click for Full text
  • Chan, A.W., et al., SPIRIT 2013 statement: defining standard protocol items for clinical trials. Ann Intern Med, 2013. 158(3): p. 200-7.  Click for Full text
  • Chen, M.S., Jr., et al., Twenty years post-NIH Revitalization Act: Enhancing minority participation in clinical trials (EMPaCT): Laying the groundwork for improving minority clinical trial accrual: Renewing the case for enhancing minority participation in cancer clinical trials. Cancer, 2014. 120 Suppl 7: p. 1091-6. Click for Full text
  • Corbie-Smith, G.M., R.W. Durant, and D.M. St George, Investigators’ assessment of NIH mandated inclusion of women and minorities in research. Contemp Clin Trials, 2006. 27(6): p. 571-9. Click for Full text
  • Cruz-Flores, S., et al., Racial-ethnic disparities in stroke care: the American experience: a statement for healthcare professionals from the American Heart Association/American Stroke Association. Stroke, 2011. 42(7): p. 2091-116. Click for Full text
  • D’Onofrio, G., et al., NIH Roundtable on Opportunities to Advance Research on Neurologic and Psychiatric Emergencies. Ann Emerg Med, 2010. 56(5): p. 551-64.  Click for Full text
  • Durant, R.W., et al., Participation in research studies: factors associated with failing to meet minority recruitment goals. Ann Epidemiol, 2007. 17(8): p. 634-42. Click for Full text
  • Durant, R.W., et al., Perspectives on barriers and facilitators to minority recruitment for clinical trials among cancer center leaders, investigators, research staff, and referring clinicians: Enhancing minority participation in clinical trials (EMPaCT). Cancer, 2014. 120 Suppl S7: p. 1097-1105.  Click for Full text
  • George, S., N. Duran, and K. Norris, A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders. Am J Public Health, 2014. 104(2): p. e16-31.  Click for Full text
  • Glickman, S.W., et al., Challenges in enrollment of minority, pediatric, and geriatric patients in emergency and acute care clinical research. Annals of emergency medicine, 2008. 51(6): p. 775-780. e3.  Click for Full text
  • Gorelick, P.B., et al., Establishing a community network for recruitment of African Americans into a clinical trial. The African-American antiplatelet stroke Prevention Study (AAASPS) experience. J Natl Med Assoc, 1996. 88(11): p. 701-4. Click for Full text
  • Gorelick, P.B., et al., The recruitment triangle: reasons why African Americans enroll, refuse to enroll, or voluntarily withdraw from a clinical trial. An interim report from the African-American Antiplatelet Stroke Prevention Study (AAASPS). J Natl Med Assoc, 1998. 90(3): p. 141-5   Click for Full text
  • Harris, Y., et al., Why African Americans may not be participating in clinical trials. J Natl Med Assoc, 1996. 88(10): p. 630-4.  Click for Full text
  • Kasner, S.E., et al., Who will participate in acute stroke trials? Neurology, 2009. 72(19): p. 1682-8.  Click for Full text
  • Kuehn, B.M., Clinical trial network removes barriers common to studies of neurological diseases. JAMA, 2012. 307(7): p. 655.  Click for Full Text
  • Levkoff, S. and H. Sanchez, Lessons learned about minority recruitment and retention from the Centers on Minority Aging and Health Promotion. Gerontologist, 2003. 43(1): p. 18-26.  Click for Full text
  • Moreno-John, G., et al., Ethnic minority older adults participating in clinical research: developing trust. J Aging Health, 2004. 16(5 Suppl): p. 93S-123S.  Click for Full text
  • Roberts, J., S. Waddy, and P. Kaufmann, Recruitment and retention monitoring: facilitating the mission of the National Institute of Neurological Disorders and Stroke (NINDS). J Vasc Interv Neurol, 2012. 5(supp): p. 14-9.  Click for Full text
  • Rogers, W. and M.M. Lange, Rethinking the vulnerability of minority populations in research. Am J Public Health, 2013. 103(12): p. 2141-6. Click for Full text
  • Rothstein, M.A., Ethical research and minorities. Am J Public Health, 2013. 103(12): p. 2118. Click for Full text
  • Scharff, D.P., et al., More than Tuskegee: understanding mistrust about research participation. J Health Care Poor Underserved, 2010. 21(3): p. 879-97.  Click for Full text
  • Schulz, K.F., D.G. Altman, and D. Moher, CONSORT 2010 statement: updated guidelines for reporting parallel group randomised trials. Int J Surg, 2011. 9(8): p. 672-7.  Click for Full text 
  • Suresh S.  Thomas, S.V., and Suresh G. Design, data analysis and sampling techniques for clinical research. Ann Indian Acad Neurol. 2011 Oct-Dec; 14(4): 287–290.  Click for Full text
  • Taylor, H.A., Implementation of NIH inclusion guidelines: survey of NIH study section members. Clin Trials, 2008. 5(2): p. 140-6.  Click for Full text
  • Taylor, H.A., Inclusion of women, minorities, and children in clinical trials: opinions of research ethics board administrators. J Empir Res Hum Res Ethics, 2009. 4(2): p. 65-73.  Click for Full text
  • Vickers, S.M. and M.N. Fouad, An overview of EMPaCT and fundamental issues affecting minority participation in cancer clinical trials: Enhancing minority participation in clinical trials (EMPaCT): Laying the groundwork for improving minority clinical trial accrual. Cancer, 2014. 120 Suppl S7: p. 1087-1090.   Click for Full text
  • Williams, M.M., et al., Barriers and facilitators of African American participation in Alzheimer disease biomarker research. Alzheimer Dis Assoc Disord, 2010. 24 Suppl: p. S24-9.  Click for Full text